“Life is not easy for any of us. But what of that? We must have perseverance
and above all confidence in ourselves. We must believe that we are gifted for
something and that this thing must be attained.” Marie Curie
Retirement:
the definitions of which are as numerous as the lucky individuals who attain
this well-earned status in their lifetime.
Goals of retiring are also various and often include travel, spending more
time with family and friends.
My
husband’s dream for retirement was to reside in a waterfront community,
embracing the expected perks of fishing, boating and cooling gulf breezes; a
dream that we have been blessed to realize, though a few years before I was
eligible to collect my earned monetary benefits. As I somewhat patiently counted down the
years, then months, then days until I could apply for and receive a monthly
check from Social Security, my dream continued to be the pursuit of my writing.
When
I began suffering gradual neck spasms and the sensation of heaviness and
extreme range of motion deficit nearly five years ago, I sought medical
attention. Multiple specialists were
consulted, numerous tests performed, and several therapeutic and pharmaceutical
remedies recommended, prescribed and employed; with no definitive diagnosis or etiology
nor relief of my symptoms.
Upon
visiting with a neuroscience specialist in June 2015, her physician assistant
recognized my ongoing syndrome as that of torticollis.
Cervical dystonia, also called spasmodic torticollis, is
a painful condition in which your neck muscles contract involuntarily, causing
your head to twist or turn to one side. Cervical dystonia can also cause your
head to uncontrollably tilt forward or backward.
A rare disorder that can occur at any age, cervical
dystonia most often occurs in middle-aged people, women more than men. Symptoms
generally begin gradually and then reach a point where they don't get
substantially worse.
There is no cure for cervical dystonia. There also is no known exact cause, though I
remain quite certain that my years of employment as a transcriptionist
absolutely aggravated my condition. That
my chronic and worsening muscle pain, pulling and deteriorating range of
movement negatively affected my quality of life became more evident. The stress of maintaining the position
working at my desk top computer exacerbated my neck pain. As I looked toward my eventual retirement, my
hope was that separating myself from the posture required during my work day
would provide benefit.
In the spring of this year, retirement benefits
commenced. Unfortunately, my dystonia
symptoms progressed, even after therapies to include quarterly botulinum toxin
injections, muscle relaxants, pain medications, cervical injections,
acupuncture, strengthening exercises, as well as physical therapy. With the freedom, time and desire now at hand
to pursue my lifelong dream of being a writer, I found myself less than
motivated as I allowed my disorder to define me. The discomfort of constant neck spasms,
coupled with the inability to bear the weight of nor hold my head up distracted
efforts at achieving my lifelong goal. Mild
depression led to reconciling that perhaps dystonia would destroy my dream.
With
much encouragement, direction and support from my dear friend of 50 years, the author
of A
Novel Creation, I was eager and thrilled to pen a personal blog
describing my newly achieved retired status and its significance in regards to
my writing goals. Being employed as a
regular contributor for an on-line home health care aide publication, I
continued to hone my research and writing skills. I eventually became aware that celebrating
the accomplishment of my written creations far outweighs the pain and
discomfort I have realized for so long.
Remaining
determined to achieve my goal of succeeding as a published writer, and with the
persistence of an idea and initial research underway for a young adults’
nonfiction story, I know the most optimal treatment for my diagnosed disorder
is to accept and persevere, learning to utilize my gifts to strengthen and
motivate. Perhaps it is this current
mindset that is allowing for a mild improvement with my second try at a course
of physical therapy.
My
prayers, of course, continue to be for a cure in the very near future. But, I have waited a lifetime to achieve
success in the pursuit of my passion.
Refusing to allow this physical obstacle to be a disincentive is my new
mantra!
I have heard there are
troubles of more than one kind.
Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have troubles with me!
~Dr. Seuss
Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have troubles with me!
~Dr. Seuss